holden’s hemangioma update

5

03.08.13

holden's hemangioma came back @ohbotherblog

It’s been about a month since we stopped the medication for Holden’s hemangioma on her right cheek, and, as you can see, it’s seen some regrowth.

You may recall from my first post on her hemangioma that hemangiomas like Holden’s usually appear a few weeks to months after a baby is born. They go through a rapid growth phase for about six months to a year, and then begin to regress at a much slower rate. The hemangioma should mostly be gone by the time a baby is two or three. So it seems like Holden’s hemangioma isn’t quite ready to go away just yet.

I was prepared to allow the hemangioma to take its course and not restart the medicine, but at the urging of my parents and my husband, I relented. I guess someone asked my mom about Holden’s bruised face at the park, so it really is becoming more noticeable.

The good news is that we know the medicine works. Looks like we’ll just have to ride this thing out a bit longer. I am pretty bummed to have her back on medication, but I obviously want to do what’s best for her.

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5 comments :

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  • Mallory Dollins

    Hi. Just wondering if you could give any updates on your daughters hemangioma now. Did you do another round of propranolol? My daughter is two months and has a deep hemangioma over her eyebrow. You have a beautiful daughter! Thank you!

    • ohbothermeg

      Hi Mallory – I took Holden back to the specialist for her one-year check-up. They told us another round of propanolol wouldn’t be worth it because it’s really only effective during the active growth phase. They also said to expect a 10% decrease each year… And that if we aren’t happy with the progress by the time she’s 7 or 8 we can explore other options. They also said that the medicine and technology could be more advanced by then. I was somewhat bummed but she doesn’t seem to notice it yet so we’re just going to continue on and keep going back annually. Good luck with your daughter’s treatment and feel free to ask me any questions!

    • ohbothermeg

      Mallory – I’m so sorry I didn’t respond sooner; this got lost in my comment list! Holden is three now and her hemangioma is still visible. At her check-in meeting in May (we go back every year) they told us that the propanolol is only good for the growth phase and wouldn’t do any good now in the remission phase. They did tell us that the hemangioma should regress 10% each year of her life, so by the time she’s 8ish it should be down to 20% of its size. If we’re not happy with it then, there are other options… Like surgery, or whatever new treatments arise in the next 5 years. Hope that helps – good luck!

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