holden’s hemangioma update

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5 Responses

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  3. Mallory Dollins says:

    Hi. Just wondering if you could give any updates on your daughters hemangioma now. Did you do another round of propranolol? My daughter is two months and has a deep hemangioma over her eyebrow. You have a beautiful daughter! Thank you!

    • ohbothermeg says:

      Hi Mallory – I took Holden back to the specialist for her one-year check-up. They told us another round of propanolol wouldn’t be worth it because it’s really only effective during the active growth phase. They also said to expect a 10% decrease each year… And that if we aren’t happy with the progress by the time she’s 7 or 8 we can explore other options. They also said that the medicine and technology could be more advanced by then. I was somewhat bummed but she doesn’t seem to notice it yet so we’re just going to continue on and keep going back annually. Good luck with your daughter’s treatment and feel free to ask me any questions!

    • ohbothermeg says:

      Mallory – I’m so sorry I didn’t respond sooner; this got lost in my comment list! Holden is three now and her hemangioma is still visible. At her check-in meeting in May (we go back every year) they told us that the propanolol is only good for the growth phase and wouldn’t do any good now in the remission phase. They did tell us that the hemangioma should regress 10% each year of her life, so by the time she’s 8ish it should be down to 20% of its size. If we’re not happy with it then, there are other options… Like surgery, or whatever new treatments arise in the next 5 years. Hope that helps – good luck!

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